This experience has forever changed me and it doesn't seem like anything could possibly feel the same after this. The world has definitely changed for me. I've gained 20 lbs., I am emotionally drained and I cannot remember what my face looked like without these black circles under my eyes. How petty, I know. But it's true. It's a bummer. I've officially participated in the 'sandwich generation'; caring for my own small children and elderly parents under the same roof. It sucks and it's lovely. I don't know how people do it. It's damn near impossible to keep everything straight. I forget everything dad wants from the store, I forget to send show & tell to school for the boys, and I can't sleep at night for the list that is running through my mind of all the things that still must be done. What will 'normal' life look like? I have no idea.
Things I would like to do:
- exercise
- plan healthy meals
- give up coffee
- write a song
- play a show
- take a hot bath
- sleep
I feel a bit selfish. What does the world feel like for him now? Nine months ago, he was given three to six months to live. Is every day a gift? I don't know. He weighs 145 lbs now and will most likely struggle indefinitely to keep weight on. We spoke recently about the quality of life. A very depressing conversation about pulling plugs and what-not. I really want him to have a great quality of life. But now his feet are going numb and he's having a hard time sleeping. It's killing me to see him deal with these daily challenges. I know I'm neither God, nor a doctor, but I was really hoping to send him home in better condition than this. All of that said, I am reminded what a miracle it is that he is alive. This time I've been afforded with him is a gift. And really, I am eternally grateful. Exhausted, but grateful.
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